Evidence and resources
The Director Of Public Health report was compiled using various evidence and resources. These materials provided essential information for its creation.
- Adam E, Sleeman KE, Brearley S, Hunt K, Tuffrey-Wijne I.
The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review .
Palliat Med. 2020 Sep;34(8):1006-1018 - All-Party Parliamentary Group on Hospice and End of Life Care (2024)
Government funding for hospices - Collier, A., Phillips, J. L. & Iedema, R. 2015. The meaning of home at the end-of-life: A video reflexive ethnography study. Palliat Med 29(8) 695-702.
- Dixon J, King D, Matosevic T, Clark C, Knapp K.
Equity in the provision of palliative care in the UK: review of evidence .
Personal Social Services Research Unit, London School of Economics and Political Science, London, 2015 - Healthwatch Kirklees (2024)
Healthwatch Kirklees: People's experiences of end-of-life care in West Yorkshire - Healthwatch Kirklees (2023)
Dying in Kirklees - What matters. Dying Well Kirklees: Health Watch Kirklees - Heslop P, Blair PS, Fleming P, Hoghton M, Marriott A, Russ L.
The Confidential Inquiry into premature deaths of people with intellectual disabilities in the UK: a population-based study
The Lancet, Volume 383, Issue 9920, 2014, Pages 889-895 - Hospice UK
Equality in Hospice and end-of-life Care: Challenges and change | Hospice UK - Hospice UK
Hospice UK - I just want to be me
London: Hospice UK; 2023 - Hughes M, Cartwright C. LGBT people's knowledge of and preparedness to discuss end-of-life care planning options. Health and Social Care in the Community. 2014;22(5):545-52.
- Hussain JA, Koffman J, Bajwah S
Invited Editorials: Racism and palliative care
Palliative Medicine. 2021;35(5):810-813 - Khan, A. N. M., Johnson, J. & Forgrave, D. 2020. Hospice care and the islamic faith: A narrative review. Middle East Journal of Nursing 14(1) 23-26.
- King's College London
Learning from Lives and Deaths - people with a learning disability and autistic people (LeDeR): King's College London
Annual Report 2022 (2022) - Lewis R
End-of-life care in non-malignant conditions - Rachel Lewis, 2018
InnovAiT. 2018;11(1):41-47 - Marie Curie
Substance use and palliative care: Information for professionals -
Marmot M, Allen J, Boyce T, Goldblatt P, Morrison J
Health Equity in England: The Marmot Review 10 Years On. Institute of Health Equity
February 2020 - Martin, T., Freeman, S., Lalani, N., et al. 2023. Qualities of the dying experience of persons who access medical assistance in dying: A scoping review. Death Studies 47(9) 1033-1043.
- Mc Veigh C, Reid J, Larkin P, Porter S, Hudson P
Palliative care for people with non-malignant respiratory disease and their carers: a review of the current evidence - PMC
J Res Nurs. 2019 Sep;24(6):420-430 - Morris J and Julian S
Preventing people with a learning disability from dying too young: Research report from Nuffield Trust
Research report, Nuffield Trust, 2024 - Mounsey L, Ferres M, Eastman P
RACGP - Palliative care for the patient without cancer
Australian Journal of General Practice. 2018. 47(11) -
NICE Guideline (NG31)
Care of dying adults in the last days of life
December 2015 -
NICE Guideline (NG142)
End of life care for adults: service delivery
October 2019 - NHS Digital (2021)
National representative data on the health of lesbian, gay and bisexual adults in England published for the first time - NHS England Digital - NHS Digital (2021)
Ambitions for Palliative and end-of-life Care: A national framework for local action 2021-2026 - NHS Digital
NHS England » LGBT health - Office for Health Improvement and Disparities (2021)
Adult substance misuse treatment statistics 2020 to 2021: report - GOV.UK
Mental heath statistics - Public Health England
Better care for people with co-occurring mental health, and alcohol and drug use conditions
A guide for commissioners and service providers - Public Health England
Faith at end-of-life
A resource for professionals, providers and commissioners working in communities - Sallnow L, Smith R, Ahmedzai SH, Bhadelia A, Chamberlain C, Cong Y, Doble B, Dullie L, Durie R, Finkelstein EA, Guglani S, Hodson M, Husebø BS, Kellehear A, Kitzinger C, Knaul FM, Murray SA, Neuberger J, O'Mahony S, Rajagopal MR, Russell S, Sase E, Sleeman KE, Solomon S, Taylor R, Tutu van Furth M, Wyatt K
Lancet Commission on the Value of Death: Section 7: Individuals, families, and communities within death systems
Lancet. 2022 Feb 26;399(10327):837-884
Further resources
External resources listed below may be of interest to readers of this report. Inclusion in this list does not constitute an endorsement from Kirklees Council.
- End-of-life care
- Tell us once about a death
- The Kirkwood hospice support
- Marie Curie, what to do when someone dies
- Citizens Advice, death and wills
- Hospice UK guide to hospice and end-of-life care
- Hospice UK advice about planning your care, making a will and organ donation
- Hospice UK Dying Matters resources, to help with conversations about death and dying
- West Yorkshire Health and Care Partnership, My Future Wishes: A Guide to Advance Care Planning
- My Life's Tapestry - online course
